The grief seems to hit out of nowhere. Most of the time it lays dormant, but some days it just takes my breath away. This is the grief of the special needs mom If you have known me very long, you know I am FIRMLY planted in the camp of thinking that my children with disabilities were perfectly made. I have quoted Psalm 139:14 a million times. I just don't believe God makes mistakes. And yes, it gets philosophically deeper and more complex than that, but at the end of the day, I hold fast that people with disabilities are not broken & God has a plan for them. But some days I grieve. Sometimes this plan is not easy for me to understand. Some days this particular picture of "fearfully and wonderfully made" Is. Not. What. I. Want. There are days I want off this path and on the path where my kids are all honor students. I don't want to spend the next 30 years changing diapers, but I might. I long to have conversations with my daughters. I don't want to navi
"Are you sure you can help her?" We were asked. The meaning was clear: this child is beyond help. There are others who can be helped. "Yes, absolutely!" I answered, with more assurance than I felt. Truthfully, I had no idea how we would help her. I knew where we would start, and I knew we had a lot of knowledge, but frankly, I was unsure what she was capable of. I was unsure of what I was capable of. I knew she was ours, so I HAD TO help her. There HAD TO be a way. So I answered with more enthusiasm than I felt. I felt a lot of fear that day, after we met the wild little girl who was clearly locked very deeply in her own world. I don't know what I imagined her to be like, but this wasn't it. I wasn't disappointed - I learned long ago to let go of my expectations of what my children would be like & free myself to enjoy who God made them to be. I knew in my heart the moment we committed, before we knew anything about her, that her